Rett Syndrome Research Foundation

The Rett Syndrome Research Foundation (RSRF) was founded in late 1999 by a small but passionate group of parents who were concerned by the lack of research being conducted on Rett Syndrome (RTT). RSRF works to fund, promote and accelerate biomedical research for the treatment and cure of RTT. RTT is a debilitating neurological disorder diagnosed almost exclusively in females. Today RSRF is the world’s leading private funder of Rett research. In the last five years RSRF has funded 82 projects at 57 of the world’s premiere institutions totaling approximately $8.8 million. Furthermore, RSRF organizes the only annual scientific meeting devoted to RTT. Each June RSRF convenes over 100 researchers and clinicians from around the world for a three day RTT symposium.

Address: 4600 Devitt Drive
Cincinnati, OH 45246